Communication tools

Co-production of a documentary movie on sickle cell disease “The Lances of Sickle-Cell or Chronicle of Unveiled Suffering”, duration approx. 60 min. Authors: Gil Tchernia and Agnès Lainé, Directors: Renan Mouren and Stéphane Indjeyian, Production: Cutkiwi and DREPAVIE. Theme: words from sickle cell patients, experience of the disease, history of sickle cell disease. The first official screening took place on November 9, 2009 at 6.30 p.m., in the auditorium of the Hôtel de Ville in Paris. Below, a video in French with English subtitles:

Creation of a DVD on Sickle Cell Disease: What is sickle cell disease? How is it transmitted? How does it manifest itself? Follow Mr. Globule who will answer the various questions from Bobby, Lilly, Francesco, Samir and Jaya. If you want to discover this DVD, you can ask for it to us by email and indicating the number of DVDs desired and the delivery address. Below, videos from the DVD (in French):

Creation of information and education booklets: Bobby (France, Angola, Brazil, Ivory Coast, Chad, Benin, Turkey), Pregnancy and sickle cell disease, Pain and sickle cell disease

Magazine published since 2010, in French: In each issue, files on particular subjects, but also the important events of the year, associative actions, testimonials, communication supports, and important addresses (you can download each of them):

Articles and interviews (“Diaspora News”, “Horizons Hémato”, “Et la santé, On dit quoi ?”, …)

Theme: Overlay by Kaira Drépavie, Agir pour la vie
Strasbourg, FRANCE